Traumatic Brain Injury (QOLIBRI-OS): (Steinbeuchel et al, 2012; international data set=9 countries, 6 languages; n=792; age=17-30 years: 34%, 31-44 years: 31%, 45-68 years: 35%; gender=male 72%; years since injury=<1 year: 12%, 1-<2 years: 13%, 2-<4 years: 26%, 4-18 years: 50%), Traumatic Brain Injury: (Von Steinbuchel et al, 2005; German data set, n=86; no information on age and gender), Traumatic Brain Injury: (Von Steinbuchel et al, 2010; International Data Set=6 languages;n=343-381; age=17-30 years:34%, 31-44 years:31%, 45-68%: 35%; gender: 72%; years since injury: <1 year: 12%, 1-<2 years: 13%, 2-<4 years: 26%, 4-18 years: 50%), Low MMSE/TICS n = 84; High MMSE/TICS n = 121, MMSE, Mini Mental State Examination; TICS, Telephone Interview for Cognitive Status, Traumatic Brain Injury (QOLIBRI-OS): (Von Steinbeuchel et al, 2012; international data set=9 countries, 6 languages; n=375; age=17-30 years: 32%, 31-44 years: 29%, 45-68 years: 39%; gender=male 72%; years since injury=<1 year: 10%, 1-<2 years: 12%, 2-<4 years: 30%, 4-18 years: 48%; test interval: 2 weeks; MMSE, Mini Mental State Examination; TICS, Telephone Interview for Cognitive Status), Cronbach’s alpha: Satisfaction subscales, ranges from .75 to .95, Traumatic Brain Injury: (Von Steinbuchel et al, 2010; Intrenational Data Set=6 languages; n=795; age=17-30 years:34%, 31-44 years:31%, 45-68%: 35%; gender: 72%; years since injury: <1 year: 12%, 1-<2 years: 13%, 2-<4 years: 26%, 4-18 years: 50%), Traumatic Brain Injury (QOLIBRI-OS): (Von Steinbeuchel et al, 2012; international data set=9 countries, 6 languages; n=792; age=17-30 years: 34%, 31-44 years: 31%, 45-68 years: 35%; gender=male 72%; years since injury=<1 year: 12%, 1-<2 years: 13%, 2-<4 years: 26%, 4-18 years: 50%), Traumatic Brain Injury: (Von Steinbuchel et al, 2010; International Data Set=6 languages; n=795; age=17-30 years:34%, 31-44 years:31%, 45-68%: 35%; gender: 72%; years since injury: <1 year: 12%, 1-<2 years: 13%, 2-<4 years: 26%, 4-18 years: 50%), Traumatic Brain Injury: (Von Steinbeuchel et al, 2010; n=795; mean age=39 (13.3); mean period follow up=5 years (3.9)). The QOLIBRI (Quality of Life after Brain Injury) is a novel health-related quality-of-life (HRQoL) instrument specifically developed for traumatic brain injury (TBI). The Quality of Life after Brain Injury (QOLIBRI) score was developed to assess disease-specific health-related quality of life (HRQoL) after traumatic brain injury (TBI). CURRENT PROBLEMS IN EPILEPSY 16: 277-292. The questionnaire has been validated in various languages from several countries, The process of development was guided by WHO concept of QOL, In cases of severe cognitive impairment, observer rating preferred (Bullinger and von Steinbuchel, 2001; Von Steinbuchel et al, 2010), Confirmatory factor analysis demonstrated that a model with one underlying factor had a reasonable fit (comparative fit index =0.98; root mean square error of approximation =0.07; X^2=39.62, df=9, p(X^2)<0.001), although, not unexpectedly with a large sample size, the p value of X^2 reached significance, Convergent correlations with the anxiety scale of the Hospital Anxiety Depression scale (HAD): coefficients between -0.37 and-0.68, and for HAD depression scale coefficients between -0.60 and -0.74, Rasch analysis of individual QOLIBRI scales showed that infit was in the required range for all items in each of the scales, Rasch analysis thus confirms that items have a satisfactory fit with their home scales, Weaker items are ‘‘self-perception,’’ with an infit value of 0.7 suggesting a certain amount of redundancy, and ‘‘run personal finances,’’ with an outfit value of 1.33, which indicates misfitting outliers in the data, Item difficulty measures ranged from -0.47 to 0.61 logits. Community Participation and Quality of Life Outcomes After Adult Traumatic Brain Injury You will receive an email whenever this article is corrected, updated, or cited in the literature. Mental Health and Family Functioning in Patients and Their Family Members after Traumatic Brain Injury: A Cross-Sectional Study. Brain Injury has associated long-term effects that have potential risks including re-hospitalization. Do you see an error or have a suggestion for this instrument summary? (2008). J Neurotrauma 27(7): 1167-1185. von Steinbüchel, N., Wilson, L., et al. QOLIBRI-OS strongly correlated to all QOLIBRI scales: Self scale (Spearman’s correlation=0.81,p<0.001), Daily Life and Autonomy scale (r¼0.75, p<0.001), Cognition scale (Spearman’s=0.74, p<0.001), Social Relationships scale (Spearman’s=0.63, p<0.001), Physical Problems (Spearman’s=0.60, p<0.001), All QOLIBRI-OS items showed strong positive correlations with the QOLIBRI total score (Spearman’s=0.64 -0.70), suggesting that the QOLIBRIOS items contributed equally to assessment of the HRQoL construct, High subscale intercorrelations (r between .54 and .79 for all subscales), In 1999, the conceptual model for the QOLIBRI was developed on the basis of a TBI literature review and consensus meetings of an international consortium composed of 15 task force members (including neurosurgeons, neurologists, neuropsychologists, psychologists, and other health care professionals working in neuro- rehabilitation), In 2002, constructed an initial item bank of 148 items, and then reduced the item set through two successive multicenter validation studies, In 2004-2006, the draft instrument was subsequently administered to 1528 persons after TBI across the centers collaborating in the QOLIBRI Task Force; Analysis and reduction of the initial 56 items based on psychometric criteria to a 49-item questionnaire consisting of seven scales, In 2006-2008, second international validation study with 921 participants with TBI. Initially reviewed by Anny de Joya, PT, MS, NCS and the TBI EDGE task force of the Neurology Section of the APTA in 9/2012. The consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are poorly investigated, and a TBI-specific instrument has not previously been available. Article Google Scholar 33. 1-844-355-ABLE, Visiting & COVID-19 Precautions | TeleHealth Visits. 2020 Jul 3;9(7):2100. doi: 10.3390/jcm9072100. The scale means are converted to the 0-100 scale by subtracting 1 from the mean and then multiplying by 25. Just as I learned that there is tangible effect on others depending on the specific words I use in describing my brain injury, it’s equally, if not more so, important that anything that falls into the "”big stuff” category is properly discussed. Arquivos de Neuro-Psiquiatria, 74, 409 - 415 . Epub 2010 Dec 8. (2010). | GCS, Glasgow Coma Scale; GOSE, Extended Glasgow Outcome Scale; HADS, Hospital Anxiety and Depression Scale; MCS, Mental Component Score; PCS, Physical Component Score; QOLIBRI-OS, Quality of Life after Brain Injury Overall Scale; QoL-VAS, Quality of Life Visual Analogue Scale; SF-36, Short-Form-36; SWLS, Satisfaction With Life Scale. 2020 Jun 4;18(1):166. doi: 10.1186/s12955-020-01391-3. Evidence has been provided for the validity and reliability of the scales, and the QOLIBRI covers domains particularly appropriate for traumatic brain injury.1, 4, 5 Both the QOLIBRI and the QOLIBRI-OS provide summary HRQoL scores. From high-quality clinical care and groundbreaking research to community programs that improve quality of life, philanthropic support drives our mission and vision. 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